i am but a humble underground goblin

Hashimoto’s supposedly doesn’t cause rashes, although apparently a lot of us have skin issues. Supposedly I just have rashes from the eczema 🥲

Hashimoto’s attacks your thyroid, which is super important for keeping you alive. It kills your thyroid over time and significantly increases your risk of developing thyroid cancer. The current “treatment” is hormone replacement as the thyroid dies :) And some doctors recommend going gluten-free (something about the protein of the thyroid gland resembling gluten + increased risk of developing Celiac iirc?)

Some people with Hashimoto’s have no symptoms once they’re on hormone replacement. Others may still have symptoms like GI issues, mood swings, weight gain, increased blood glucose, fatigue, joint pain, feeling cold a lot, menstrual issues, headaches, just to name a few off the top of my head (but there any many)

No one ever told me this part (I was diagnosed over a decade ago), but we also actually have higher nutritional needs. The body is CONSTANTLY using resources attacking itself, the same resources it would normally use for something like an infection. So we’re more prone to nutritional deficiencies, like iron, B-vitamins, and vitamin D.

There have been “rare” instances where the antibodies have started attacking the brain (I use quotes because Ha Ha It’s Hard To Get Doctors To Investigate Anything, could be affecting more people than we know!)

Depending on how much hormone your thyroid can still produce, you might be able to go some time without your thyroid meds. First few years of my diagnosis I technically didn’t “need” meds, but I took them occasionally because research showed that starting them before needed can slow the progression of the disease. Now I can maybe miss a day and not really notice… more than that and I start noticing it. I’m still on a low dose, so I imagine my body is still making enough hormone that I could probably live a few months without it while feeling very shitty and doing damage to my organs.

If your thyroid isn’t producing enough hormones and you aren’t on treatment, you will eventually decline and go into a coma. You can still be treated at this point… but without treatment, bye 😭

i imagine it’s just a coincidence, but cue the “OP, you have a cancer” comments /silly

I ended up downloading it, as a lot of the reddit comments mentioned improved battery life and I’ve been experiencing pretty bad battery drain since my last update (beta 1 I think). I think my battery life has improved.

People have been mentioning the WiFi randomly not working. I’ve been experiencing this too now. It seems to randomly drop several times a day, and is fixed by turning the WiFi off and back on again on the phone. iPhone 13 Pro

i know i’m starting to get a bit edgy with the criticisms, so i just wanted to let you know that your comment keeps making me laugh and i do take it as a compliment in a way

https://venngage.com/tools/accessible-color-palette-generator is what I used for the color palette

i took the hex code of the meta logo and inverted it (anti-meta theme) for a hex code of #F9971E and generated a palette. this was one of the palettes. i went with a more monochrome palette for people who may have trouble distinguishing between colors.

as i do not have any relevant visual impairments myself, i cannot comment on the readability/accessibility.

saying “i don’t think this is accessible” is not helpful (you’re not the only person who has said this) as it does not tell me what is accessible.

i myself am severely disabled and unable to work and living in extreme poverty. i came up with this idea, shared it on social media, and asked if anyone would be willing to make a graphic. no one did.

if the cause matters to you, you always have the option to make your own graphic. i literally cried several times making this because i do not have the energy, the time, or a usable device to make this, or the money to purchase anything usable. i made it on my phone on the free version of Ibispaint, which is the equivalent of using ms paint with a trackpad, if not worse. i have shaky hands and painful joints.

as for my migraine, i can’t comment on that, as i have chronic migraines. we are advised to avoid noise and bright screens. if i do that i’m stuck listening to the convincing voices in my head screaming at me to kill myself while still being in physical pain. i prefer to continue to be in pain while deluding myself into volunteering time and energy i do not have trying to make this world a better place only to achieve nothing and to have ended up wasted time and getting shit on for it, while everyone else who does have the time, energy, and resources complains that no one ever does anything.

if i took spent hours on this (yes, this took hours because of how unusable the app is), other people can take a few minutes to explain to me how i can make this accessible, if it’s something they actually care about and aren’t just virtue-signaling. or! they can take a few minutes to make an accessible graphic themselves

i’ve heard that - but if signal becomes popular enough with individuals, i imagine businesses would eventually switch over to signal as well

could encourage people to move to signal while keeping whatsapp maybe… until one day hopefully no one uses whatsapp anymore :)

i think most people just don’t care

i agree - so the question is, how do we make them care?

https://nord.pub/c/fediverse/p/44092/ideas-for-making-fetch-happen-a-mass-exodus-to-the-fediverse

https://piefed.social/c/fediverse/p/1897818/how-to-sucesfully-post-about-piefed-on-reddit

i’ve been trying - and seemingly failing - to make people care for awhile. but i’ll do my best to keep trying.

i was banned from reddit for months… maybe close to a year? it seems pretty easy to set off their ban hammer.

mark and the gang built tools to scrape you other account back in the day an add the data to facebook. made it easy to switch. they also made it close to impossible to do the same to facebook. but it would require something like that to get people on to something else.

i was thinking that - and apparently fedibook does allow you to import all your facebook posts :)

wafrn allows bluesky imports… i imagine with activitypub, hypothetically some stuff from threads could be imported, but i don’t know for sure.

pixelfed does allow you to import your instagram account

as for the government stuff… yeah. don’t like it.

like your username btw

thanks! when new sites i’m interested in pop up, i like to try to get a silly username related to the site name sometimes, although i think piefed might’ve been around for a year before my username? but i kept seeing it mentioned on reddit around the time i joined and i’d never heard of it before, so i assumed it was new (although it is still pretty new in the grand scheme of things, i think :))

i used opendyslexic for accessibility (i am not an accessibility expert by any means, so i apologize for anything that’s off)

i don’t know if this one is really any better, but my friend suggested changing the layout to something more like this

edit: she suggested more changes, unfortunately what im using to make this is the mobile equivalent of ms paint with a trackpad, so i’m in hell :)

fedibook seems really new; i think it’s only been up for a few weeks? but it looks close to facebook, and apparently has an option to import facebook posts

i couldn’t find any screenshots of it, but i took some of my own after making a throwaway account

for me, it just feels closer to facebook design-wise than friendica and diaspora. every friendica instance that has a normie-friendly url seemed glitchy or just flat out took forever to load. before i stumbled upon fedibook, i was thinking about recommending spacehey or bliish (which are also interesting, but spacehey is invite-only right now; can’t remember what i didn’t like about bliish)

thank you, but it’s unironically not for me (unless you count the benefits from friends leaving meta)! i’ve never had a threads and i recommend wafrn because i genuinely love it. i do have an insta, but i rarely use it. never used whatsapp… have facebook but i don’t use messenger much; been using signal for awhile. i do use facebook… but again, not very much.

i wanted to do a challenge this month for people to switch their search engines away from google, but then i realized “no meta may” sounds better :) google can be another time…

it’s a social media challenge, not a personal one.

i’m happy for you, but the average person does find this challenging. if they didn’t, meta websites and apps wouldn’t be the some of the most visited websites/used apps in the world, and zuckerberg wouldn’t be rich.

Haven’t used this beta myself so far, but according to the reddit thread, people are reporting issues with WiFi, cellular data, and GPS.

According to some of the comments I’ve seen on reddit, people seem to think it’s less glitchy than beta 2 so far. I’m still on beta 1. Lots of people seemed to dislike beta 2 so I didn’t bother with that one. Personally waiting to hear other experiences before I decide whether or not I want to install this beta

If you were an educated adult, you’d know that banning drugs tends to cause more harm. You’d also know that some drugs have positive effects on learning, cognition, attention, memory, mood, emotional regulation, and empathy, when used appropriately and responsibly. All of which contributes to a society of healthy and educated adults.

On Wafrn you can see and interact with posts on Wafrn, Mastodon, Misskey, and Bluesky.

same - but be sure to contribute to the niches here when you can, so the people from there have a reason to start coming here :)

i personally don’t mind, but i think some communities have rules about not reposting from reddit